Family Stories

Because the roots of inherited disease are planted at birth, the trials and tribulations of affected individuals and their families are life-long. Recognizing the importance of sharing life stories among individuals with similar health problems, we have invited several of our colleagues and patients to share with you their experiences. Their contributions in this section are stories of extraordinary courage and selflessness.

If you have a family story to share with our community of readers, we encourage and invite you to send it to us.