Brain Injury Resources
For more detailed information on coma
many other related subjects, presented in a personal
and comprehensible manner by someone who's "Been
There", please visit http://www.waiting.com,
also known as "The Waiting Room".
Brain Injury Society
http://www.bisociety.org/physiatry.cfm
American Academy of Neurology
http://www.aan.com/
American Board of Psychiatry and Neurology, Inc.
http://www.abpn.com/
American Neurological Association
http://www.aneuroa.org/
Association of University Professors of Neurology
http://www.aupn.org/
U.S. Department of Education, National Institute
on Disability and Rehabilitation Research
http://www.ed.gov
Clinical
Trials and Noteworthy Treatments for Brain
Tumors - The leading Internet resource for
brain tumor treatment and information!
TBI Helpdesk for
Caregivers - Owned and Operated
by Jamaica Hospital Medical Center; Sponsored
by
United Hospital Fund.
The
Whole Brain Atlas - Tremendous
brain atlas, visuals are terrific, the depth
is superb. From
Harvard, and it is worthy of Harvard. This
is the web at its best; very technical but you
can learn
at your own pace, through text and visuals.
Brain
Map - This article describes some of the
common effects of damage to specific areas
of the
brain.
Traumatic
Brain Injury Resource Guide - The
TBI Resource Guide is the Internet's
central source
of information, services and products
relating to traumatic brain injury, brain injury
recovery,
and post-acute rehabilitation. TBI
Publications - Many
of the articles in this site can either
be ordered, viewed, or
downloaded.
Go to the CNS site and just click on
a title of choice and then on the link following
the
reference
line.
The
Anatomy of Head Injury - This
article describes what happens to the brain
as a result of a
trauma.
Head Injury
Hotline - Head
Injury Hotline is a place where visitors
can get information,
join a discussion
group, build advocacy skills,
and self-care skills, or assess their
own clinical
situation
and more.
Neuropsychology
Central - This
is a comprehensive World
Wide Web directory
listing devoted
exclusively to the subject
of Human Neuropsychology.
MCH
Neurology Web Forum - This is an attempt to
start
an interactive, online
discussion
about various
Neurology-related
topics. Ongoing, unscheduled chats
on a number
of
neurology-related
topics. User-friendly
page!
Head Injury
Society of New Zealand Home
Page - The
mission
of this site
is to
provide basic
information for people who are
newly introduced
to brain injury
by the injury
or illness
of a friend
or relative.
The site is
also a link between industry
professionals
and
local support
groups. Finally, but perhaps
most importantly,
the site will
allow people
in recovery
from head
injury to
talk to each
other
by e-mail and
to be advocates for
their own needs.
CCC
of VA -
The Concussion Care
Centre
of Virginia, Ltd. provides
interdisciplinary
rehabilitative
care for
individuals with neurologic
and
muscoloskeletal
disorders.
Some of
the neurologic disorders
treated
include
acquired brain
injury,
spinal
cord injury, multiple
sclerosis,
post concussive
disorders,
cognitive behavioral
problems
and cranial trauma.
The Concussion
Care Centre
of Virginia,
Ltd. is
also one
of the few
B(intrathecal
baclofen)
therapy National Spasticity
Centers
in the state for
monitoring
of intrathecal
baclofen
pumps and
dosage adjustment.
US
Government Agencies - A List
of Federal
Agencies
on
the Internet.
Shaken
Baby (as
a form
of TBI) - The
Shaken Baby
Alliance's mission
is to
provide support
for SBS
victim families
(Including adoptive
and foster
parents), advocate
for justice
for SBS
victims, and
increase SBS
awareness.
Social
Security Administration:
How we
can help
with Vocational
Rehabilitation - The Social
Security
Administration (SSA)
can help
people with
disabilities get
the vocational
rehabilitation services
they need
to return
to work
or to
go to
work for
the first
time. We
can put
them in
touch with
agencies that
provide services
such as
job counseling,
training and
job placement.
The
Disability Link
Barn - Access Unlimited
is a
manufacturer/distributor of
adaptive
transportation and
mobility equipment
for people
with disabilities.
Brain
Injury Center - Your
doorway to
information regarding
acquired brain
injury which
is any
injury to
the brain
including stroke,
trauma, anoxia,
infection, and
tumors. There
is a
world of
help available
to you
and your
family through
this doorway.
Welcome to
a place
full of
information and
resources, the
Brain Injury
Center!
Gentiva
Health Services (Rehab
without Walls) - Rehab
Without Walls
was founded
in 1991
as an
alternative to
traditionally
delivered
rehabilitation services.
As the
name suggests,
the intention
is to
provide comprehensive
rehabilitation
beyond
the boundaries
of the
typical walls
associated with
clinic and
hospital environments
TBIMS Links - The
Traumatic Brain Injury Model Systems National Data
Center Kessler Medical Rehabilitation
Research and Education Corporation of West Orange,
New Jersey.
Coma Waiting Page - You Who are Waiting
While Someone is in a Coma.
National
Resource Center for Traumatic Brain Injury - A Guide
for Survivors.
Links to
Brain Injury related sites on the WWW - Links brought to you by the Brain
Injury Association
of Washington.
Traumatic Brain
Injury Survival Guide - Nearly all
of the survivors of a traumatic head injury and
their families with whom I have worked has had
one complaint: There is nothing written that explains
head injury in clear, easy to understand language.
Most say the available material is too medical
or too difficult to read.
John & Clara's
TBI Related Sites and Information - TBINET
was started by John & Clara Lyon in late 1997.
We started in 1994 as a brain injury victim and
a caregiver when Clara was in a motor vehicle accident
sustaining a "mild" brain injury. Read
more. . . .
University/Education
Disability Information - Categories include Education Resources,
Job Training/Placement, and University Resources.
Brain Injury and
Neuropsychology - Devoted
to the understanding of brain injury, and
the neuropsychologist's role in identifying, proving
and treating brain
injury; a.k.a. tbidoc.com presented by ANTOINETTE
APPEL, Ph.D. of Plantation, Florida. TBI,
Brain Injury, Links - The TBI Chat Room & Homepage.
HealthGrades - HealthGrades.com’s™ goal
is to provide information to consumers that helps
them select the best quality providers of medical
care. The one-of-a-kind Internet service supplies
valuable information about the quality of health
care provided by individual hospitals, physicians,
nursing homes, and health plans in the United States.
Traumatic
Brain Injury Resource Guide -
This TBI Resource Guide is the internet's
central source
of information, services and products relating
to traumatic brain injury, brain injury recovery,
and post-acute rehabilitation. This site includes
a patient
evaluation criteria and a patient
satisfaction survey online.
A
Parent's Guide to Special Ed/Special
Needs - Disabilities
covered under the Individuals with Disabilities
Education Act (IDEA).
National
Center for Injury Prevention and
Control - Injury
Care • Acute Care • Disability & Rehabilitation • Traumatic
Brain Injury Violence • Family & Intimate • Suicide • Youth.
The National Center for Injury Prevention
and Control (NCIPC) works to reduce morbidity,
disability,
mortality, and costs associated with injuries. Journals/Cognition - A comprehensive listing
of online journals from the fields of psychology,
psychiatry, and related mental-health fields.
Chances
are, if its out there, its listed here.
Ontario
Brain Injury Association - One of the
primary goals of the Ontario Brain Injury
Association (OBIA)
is the prevention of traumatic brain injury.
In accomplishing this goal, it is our intention
to
provide up-to-date information about concussion;
what treatment is necessary, and what guidelines
should be followed for return to activity
following concussion(s).
Legal Encyclopedia - Over 200 products. Nolo's mission is
to increase the average person's
access to the
law. When the company began back in 1971,
a book was the best way to put the law into
people's hands.
So Nolo published paperbacks that gave folks
the step-by-step instructions and forms they
needed
to handle day-to-day legal tasks. Now this
information is available online.
Head Injury
Law Firm - Nelson Tyler Langer (Telephone:
206-623-7520) are a law firm dedicated
to helping
people receive the medical care and compensation
they deserve after suffering the effects of
a brain injury, spinal cord injury or other
serious injury
following an accident.
Hospice
Patients Alliance - Resuscitation, DNR Orders, CPR in hospice
Orders, Power of
Attorney Forms,
Advanced Directives. Making decisions ahead
of time, filling out Advanced Directive forms
and
using DNR forms to clarify the patient's wishes
has many benefits, and it is important to
realize, the patient can change his Advanced
Directive or
DNR form at any time, simply by making his
wishes known to the physician, other hospice
staff or
other adults.
U.S.
Architectural and Transportation
Barriers Compliance Board - The U.S.
Access Board,
also known as the Architectural and Transportation
Barriers
Compliance Board. The Board, created in 1973,
has served the nation as the only independent
federal
agency whose primary mission is accessibility
for people with disabilities.
Head
Injury Law Glossary - This link to the Brain Injury
site defines law terms commonly
used in
injury claims and their resulting judicial
proceedings. Entries presented in this glossary
have been simplified
for ease of understanding by non lawyers .
Entries in this section were taken from Black's
Law Dictionary,
Abridged fifth edition, 1983 and Oran's Law
Dictionary for Non Lawyers,1975.
Epilepsy
Foundation Of America - 4351 Garden
City Drive, Landover, MD, 20785-2267.
Telephones:
301-459-3700
/ 800-332-1000. Provides information and referrals
to patients with epilepsy/seizure disorders,
their families, health professionals, and
the general
public. e-mail: postmaster@efa.org
Charlie
Foundation - 501 10th Street, Santa Monica,
CA 90402 - Telephone: 800-367-5386.
Promotes the
use of the ketogenic diet through awareness
and training.
Australian Support Dogs - P.O.
Box 644, Mona Vale N.S.W 2103, Australia,
Telephone:
612-9979-6986
Fax: 612-9979-6827; E-mail: pbennett@asdog.org.au.
Guidelines
for secondary stroke prevention
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