Genetics and Louisiana Families is a collection of educational information about genetics, especially those genetic issues that are important to the people of Louisiana. Genetics and Louisiana Families is written and designed to be useful to the families of individuals affected by genetic disease, as well as to their healthcare providers. By serving both families and providers, the authors of Genetics and Louisiana Families seek to create the common ground crucial to understanding the often complex genetic and social issues surrounding the health of individuals, communities, and cultures.
With Genetics and Louisiana Families, we have gathered the geneticists, researchers, educators, and counselors who are the most knowledgeable about genetics and Louisiana peoples. Most of the contributors to Genetics and Louisiana Families are Louisiana residents and practitioners, and others have either trained or have conducted research here among the families of Louisiana. While we focus on Louisiana and its peoples, we also recognize the remarkable genetic similarity of peoples around the world and from all cultures. For this reason, Genetics and Louisiana Families can serve as a useful resource of genetic information for all.
In Genetics and Louisiana Families, you will find the following features:
Genetics and Louisiana Families is a production of the Center for Acadiana Genetics and Hereditary Health Care.
The Center for Acadiana Genetics and Hereditary Health Care (CAGHHC) was established in 1999 to address the specific genetic needs of the people of Acadiana. Funding for the CAGHHC derives from a Rural Health Outreach Grant from the Health Resources and Services Administration (HRSA). These funds are being applied to the establishment and expansion of clinical and educational programs across the fifteen-parish area of Acadiana, which extends roughly from west of Baton Rouge to the Texas state line and from the Gulf of Mexico north to Avoyelles Parish.
The CAGHHC is a cooperative of hereditary healthcare workers from medical, academic, and service institutions around the state. Under the direction of Dr. Bronya Keats, the Center is headquartered at LSU Health Sciences Center as an outreach component of the Molecular and Human Genetics Center of Excellence.
The concept to establish the CAGHHC was inaugurated by U.S. Congressman Billy Tauzin, who represents one of the largest Acadian constituencies in the state. With the support of the late Dr. Merv Trail, Chancellor of LSU Health Sciences Center, and Governor Mike Foster, Tauzin and his colleagues in the Louisiana Congressional delegation were united in their support to establish the CAGHHC. Together with Tauzin, Senators John Breaux and Mary Landrieu and Congressmen William Jefferson, David Vitter, Richard Baker, Chris John, Jim McCrery, and John Cooksey signed a letter endorsing establishment of the Center. Solid backing from the Louisiana Congressional delegation helped pave the way for Congressional hearings before the House Appropriations Subcommittee on Labor, Health and Human Services, and Education in March of 1998, 1999 and 2000.
During these hearings, Tauzin explained that "the establishment of the Center meets the congressional objectives of building the nation's health system by delivering services to the Americans who need them most-particularly those who are vulnerable and have special health conditions.
"The work being done by the Center for Acadiana Genetics not only benefits my rural district constituency, it helps all those young people who suffer because of hereditary health problems by providing America's medical and scientific research communities with the opportunity to study an important spectrum of genetic diseases in the unique multi-generational setting available in Louisiana."
John Doucet, Ph.D., is a molecular geneticist at Nicholls State University, Thibodaux, Louisiana.
Brian Jakes is Chief Executive Officer of the Louisiana Area Health Education Centers.
Bronya Keats, Ph.D., is Director of the Center for Acadiana Genetics and Hereditary Health Care and Chair of the Department of Genetics at the LSU Health Sciences Center in New Orleans.
Judy LaBorde is Administrative Coordinator for the Center for Acadiana Genetics and Hereditary Health Care.
Yves Lacassie, M.D., is Chief of the Genetics Section in the Department of Pediatrics at LSU Health Sciences Center in New Orleans.
Charles Myers, M.S.W., is Director of the Louisiana Genetic Diseases Program in the Office of Public Health.
Alan Robson, M.D., is Medical Director of Children's Hospital in New Orleans.
Jess Thoene, M.D., is Director of the Genetics Program at the Tulane University Medical Center.
Genetics and Louisiana Families was created and is maintained for educational purposes only.
The goal of Genetics and Louisiana Families is to provide users with information to better understand their health and their genetic diagnosis, as well as the health and diagnoses of family members. It is not the intention of Genetics and Louisiana Families to provide specific medical advice. The information provided by Genetics and Louisiana Families should not be used as a substitute for seeking professional healthcare. If you have or suspect you may have a medical condition, you should consult your primary healthcare physician for further information and advice.
Genetics and Louisiana Families cannot provide specific information to individuals about their condition or about treatments for their condition. The maintainers of the Genetics and Louisiana Families website will not engage in providing specific medical advice or professional services. Specific medical advice and professional services must be obtained from a professional, licensed healthcare worker in a medical setting.
All efforts have been made to ensure the accuracy of the information contained in Genetics and Louisiana Families. Genetics and Louisiana Families and its maintainers cannot be held responsible for the accuracy of information contained on these pages. Genetics and Louisiana Families and its maintainers cannot be held responsible for any action made on the basis of information on these pages.
Thank you for visiting Genetics and Louisiana Families, part of the Louisiana State University Health Sciences Center website. Your privacy is very important to us. Simply stated, our policy is to collect no personal information about you when you visit our website unless you affirmatively choose to make such information available to us.
When you visit our website, our web server automatically recognizes only the Internet domain and IP address from which you accessed our website. This information does not result in the identification of your personal e-mail address or other personal information.
In addition, we gather information regarding the volume and timing of access to our website by collecting information on the date, time and website pages accessed by visitors to the website. We do this so we can improve the content of our website and this information is not shared with other organizations. Again, only aggregate information is collected and individual visitors' personal information is not identified.
If you choose to share personal information with us - by sending us a message, or filling out an electronic form with personal information - we will use the information only for the purposes you authorized or in support of university sponsored programs - we will not disclose the information to other third parties or government agencies, unless required to do so by state or federal law or in support of university sponsored programs.
Unless specifically noted, material contained on the Genetics and Louisiana Families site is freely available to the public. However, in any subsequent use of this work, we request that Genetics and Louisiana Families be given appropriate acknowledgement.
Genetics and Louisiana
Families may also contain
material that is copyright protected.
For such material, the submitting
authors or other copyright holders
retain rights for reproduction or
redistribution. All persons reproducing
or redistributing such information
are expected to adhere to the terms
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holder. Such protected material,
however, may be used under the terms
of "fair use" as defined
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Genetics and Louisiana Families contains many reviews of genetics topics that may be suitable as references supporting other works. The following are examples of suggested formats for citing specific chapters in Genetics and Louisiana Families. Consider the chapter, "The Genetics of Cancer," by Dr. Jay Hunt:
American Psychological Association (APA) Style
Hunt, J. (2002) The genetics of cancer. In J. Doucet and B. Keats (Eds.), Genetics and Louisiana Families. [On-line.] Available: http://www.lsuhsc.edu/no/centers/genetics/LouisianaFamilies.
Council of Biological Editors (CBE) Style
Hunt, J. The genetics
of cancer. In: Doucet, J. and Keats,
B, eds. Genetics and Louisiana
Families. 2002. [On-line.] Available:
The Editors and the Editorial Review Board of Genetics and Louisiana Families hereby acknowledge individuals and groups without whom the success and usefulness of this web site would not be possible:
Dr. Carl Brasseaux, of the Center for Acadian Studies at the University of Louisiana - Lafayette, for directing us to vintage photographs of historic Acadiana and its peoples
The German-Acadian Coast Historical and Genealogical Society and the St. James Historical Society for directing us to vintage photographs of historic Acadiana and its peoples
Nicholls State University for service and management of electronic communication between the Editors and contributors
The students of Genetics and Scientific Writing classes at Nicholls State University for their editorial assistance and suggestions
The archival photos used on this web page were made available by the German-Acadian Coast Historical and Genealogical Society, by the St. James Historical Society, and by Dr. Carl Brasseaux of the Center for Louisiana Studies at the University of Louisiana-Lafayette. These photos vividly capture the times and the spirit of the people of Louisiana, and we are deeply grateful for the privilege of using them.
The archival photos in Genetics and Louisiana Families are used to honor the ancestors of southern Louisiana--the way they worked, the way they shared life's joys, the way they cared for their families. Genetics and Louisiana Families neither implies nor assumes that any person appearing in these photos is a carrier of or is affected by a genetic disorder. Further, Genetics and Louisiana Families neither implies nor assumes that any descendant of persons appearing in these photos is a carrier of or is affected by a genetic disorder.
Any corrections to, omissions from, additions to, or comments about Genetics and Louisiana Families can be sent by e-mail to the Editors.