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Lung Cancer Resources

Educational Guides:

  1. Lung Cancer Resource Guide
  2. Lung Cancer Toolkit (American Lung Association)
  3. Understanding Lung Cancer Risk and Screening (Lung Cancer Alliance)
  4. Understanding Your Pathology Report (Lung Cancer Alliance)
  5. Understanding Your Diagnosis (Lung Cancer Alliance)
  6. "Know Your Lung Cancer Team" Leaflet
  7. Frankly Speaking About Cancer (Cancer Support Community, 5th Ed.)
  8. A Treatment Guide for Patients and Their Families (Patient Resource Publishing, 4th Ed.)
  9. "Five Facts You Don't Know About Lung Cancer" Leaflet
  10. After Diagnosis: A Guide for Patients and Families (American Cancer Society)

Interactive Tools:

  1. My Family Health Portrait (Surgeon General)
  2. Cancer of the Lung Evaluation and Assessment of Risk (CLEAR)
  3. Check in With Your Lungs Lung Health Checklist (Lung Foundation) (PDF)
  4. Lung Symptoms Assessment Questionnaire (Right Diagnosis)
  5. "What is My Risk For Lung Cancer?" Quiz (Lung Cancer Alliance)
  6. "Your Lung Cancer Risk" Questionnaire (Siteman Cancer Center)
  7. Lung Cancer Risk Assessment Tool
  8. "Your Lung Cancer Risk: What Do You Know?" Quiz (Everyday Health)
  9. Lung Cancer Screening Tool (American Lung Association)
  10. Lung Cancer Screening Decision Tool (Memorial Sloan Kettering Cancer Center)
  11. "Burn Out: A Lung Cancer Challenge" (CancerQuest)
  12. "Know the Flow: Lung Cancer" Quiz (CancerQuest)
  13. The Patient Personal Journal
  14. The Caregiver Personal Journal

Social Support:

  1. Lung Cancer Support Group (LUNGevity)
  2. Patient Support Group (CancerCare)
  3. Caregiver Support Group (CancerCare)
  4. Lung Cancer Survivors Support Community (Inspire)
  5. Lung Cancer Support Group (DailyStrength)
  7. Cancer Support Community
  8. Cancer Hope Network
  11. Peer-to-Peer "Phone Buddy Program": 1-800-298-2436 (Lung Cancer Alliance)
  12. Lung Cancer Support Helpline: 1-888-793-9355
  13. White Ribbon Movement - Supporting Lung Cancer Awareness (Facebook)


Financial Assistance: 

  1. A Helping Hand: The Resource Guide for People with Cancer (CancerCare, Financial Ed.)
  2. CancerCare Co-Payment Assistance Foundation (CCAF)
  3. Patient Assistance NOW Oncology or call 1-800-282-7630
  4. Cancer Financial Assistance Coalition (CFAC)
  5. Patient Advocate Foundation
  6. The Co-Pay Relief Program (Patient Advocate Foundation)
  7. Patient Access Network Foundation
  8. (Foundation for Health Coverage Education)


Other Web Links and Organizations:

  1. Lung Cancer Profile Resources
  3. Legal, Case Management and Employment Resources (Lung Cancer Alliance)
  5. The Patient Resource Cancer Guide
  6. Lung Cancer Circle of Hope
  7. Free To Breathe
  9. American Lung Association's Lung Helpline : 1-800-LUNGUSA (1-800-586-4872)

Smoking Cessation:

  1. The Cost of Smoking Calculator 
  2. Smoking Risk Calculator
  3. "What Do You Know About Quitting Smoking?" Quiz (Inspira Health Network)
  4. Non-Smoking Confidence Assessment and Tips (American Heart Association)
  5. "Lung Cancer in African American Men" Leaflet (Centers for Disease Control and Prevention)
  6. A Quit Smoking Guide for People 50 and Older (National Cancer Institute)
  7. "Clearing the Air: Quit Smoking Today" Booklet (National Cancer Institute)
  8. Smoking Cessation Educational Kit
  9. Smoking Cessation Quit Kit (Cosumer Guide, U.S. Department of Health and Human Services)
  10. Quit Smoking Patient Resources (Division of General Medicine and Clinical Epidemiology)
  13. National Cancer Institute QuitLine: 1-877-44U-QUIT (1-877-448-7848)
  14. Louisiana QuitLine: 1-800-QUIT-NOW (1-800-784-8669)

Contact Us

2015 3:47:28 PM

Diptasri Mandal, PhD:

Principal Investigator

(504) 568-6156      

Angelle Bencaz, MSPH
(504) 568-2216


Jessica Chambliss, MS, CRC:
(504) 568-7027

Toll-Free: 1-888-720-7757      


*Click here to email us your contact information 


**Click here to complete and submit our Participation Form**



Lung Cancer Study Newsletters:                                                                                                                                                                                                                          



Funds to support this project have been obtained from:

National Heart, Lung, and Blood Institute (NHLBI)

National Institutes of Health (NIH)


The Lung Cancer Study is part of the Genetic Epidemiology of Lung Cancer Consortium (GELCC):


The GELCC is the only familial lung cancer study consortium in the world. 

Hospital Collaborators

Our Study's Local Network of Collaborators:

Related Articles and Publications


"Genetic Epidemiology of Lung Cancer"

What is the Lung Cancer Study?

  • In 1996, the Lung Cancer Research Study at LSU Health Sciences Center in New Orleans first began to look at the possible genes that affect the potential risks of developing lung cancer in certain families. We have been going non-stop ever since, continuing our search for those genes.
  • The Lung Cancer Study's primary aim is to find all of the gene(s) that may cause lung cancer.
  • The study will help scientists and the community understand how the gene(s) work with environmental factors (such as smoking and other exposures) in causing lung cancer.


What information does the Lung Cancer Study collect from participating individuals?

  • We collect demographic, medical, and smoking history information by mail and/or phone.
  • In some cases, a one-time only blood sample and/or saliva sample will be collected at your convenience with the kits we provide.
  • If diagnosed with lung cancer, pathology reports will also be collected upon authorization of the patient or next-of-kin when beneficial.


Is the information collected for this study protected?

  • Yes, we are fully compliant with HIPAA (Health Insurance Portability & Accountability Act) and have received approval from the IRB (Institutional Review Board).
  • All of the information is collected, coded, and stored in a confidential manner and used only for the purposes of this study. 
  • No identifiable information is shared with anyone outside this study.
  • Everything you provide will remain strictly confidential. Your privacy is important to us.


Who can participate in this study?

  • Anyone diagnosed with lung cancer is encouraged to contact us.
  • You can participate no matter where you live. Participants do not need to come to LSU Health Sciences Center for enrollment. All information can be provided remotely, all-expenses-paid.
  • Family members may have the opportunity to participate.
  • Current or former smokers that are 60 years of age or older who are not diagnosed with lung cancer and do not have a family history of lung cancer can participate as a "control."
  • We also welcome participation from spouses of enrolled lung cancer cases as (married-in) controls if they do not have a family history of lung cancer.
  • Please click here on the "Participation Form" if you would like to enroll in the study. 


Is there any cost to participate?

  • No, there is no cost to participate in the study. 
  • All study-related materials and kits will be provided to you, free of charge.
  • We aslo include pre-paid mailers to return any consent forms, questionnaires and samples (bloor and/or saliva).


Why should people participate?

  • Lung cancer is the second most common form of cancer diagnosed among men and women with the leading cause of cancer deaths in the United States. 
  • Some people may carry a gene(s) that increases their risk of developing lung cancer when exposed to certain environmental agents.
  • The study investigators are identifying and learning about people susceptible to lung cancer in order to find information that can lead to cancer prevention in the future. Identifying cancer susceptibility gene(s) in individuals and/or families can play a major role in preventing the disease before it occurs.
  • This study also encourages participants to gain further knowledge of their family's health history. Collecting your family history can be an important tool used in assessing your risks for certain inherited diseases.
  • Participation of more families will give us better opportunities of finding the familial lung cancer gene(s).


How will participating help in the fight against lung cancer?

  • Participants will not benefit directly from this study, but they will help us understand more about the genetic causes of lung cancer. So, please know that by participating you will have helped researchers understand more about lung cancer.
  • Participation may result in a future benefit to the patient or to other relatives in finding the gene(s) that increase the risk for lung cancer in some families. Individuals taking part in this study today will help future generations to come.
  • In the long run, participation may contribute to the development of better lung cancer diagnoses, individualized treatments, and preventions.