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Lung Cancer Resources

Educational Guides and Materials:

  1. Lung Cancer Resource Guide
  2. LUNGevity's Lung Cancer Glossary 
  3. Lung Cancer Toolkit  (American Lung Association)
  4. What You Need To Know About Lung Cancer (National Cancer Institute)
  5. Understanding Lung Cancer Biopsies: A Guide for the Patient (Lung Cancer Alliance)
  6. Understanding Your Pathology Report: A Guide for the Patient  (Lung Cancer Alliance)
  7. Understanding Your Diagnosis: A Guide for the Patient  (Lung Cancer Alliance)
  8. Understanding Non-Small Cell Lung Cancer: A Guide for the Patient (Lung Cancer Alliance)
  9. Understanding Small Cell Lung Cancer: A Guide for the Patient (Lung Cancer Alliance)
  10. Lung Cancer: New Treatment Directions, A Guide for the Patient (Lung Cancer Alliance)
  11. Understanding Your Surgical Options for Lung Cancer (Information Booklet for Patients)
  12. Lung Cancer Resection (Patient Education Institution, Inc)
  13. "Know Your Lung Cancer Team"  Leaflet
  14. Frankly Speaking About Cancer  (Cancer Support Community, 5th Ed.)
  15. A Treatment Guide for Patients and Their Families  (Patient Resource Publishing, 4th Ed.)
  16. Lung Cancer: New Tools For Making Decisions About Treatment fact sheet (CancerCare)
  17. Caring for Your Loved One with Lung Cancer (CancerCare)
  18. Living With A Diagnosis of Lung Cancer (Free to Breathe)
  19. After Diagnosis: A Guide for Patients and Families  (American Cancer Society)
  20. Lung Cancer Choices  (Caring Ambassadors Program, 2nd Ed.)
  21. With Every Breath: A Lung Cancer Guidebook
  22. Better Living with Lung Cancer: A Patient Guide (Lung Foundation)
  23. "Five Facts You Don't Know About Lung Cancer"  Leaflet
  24. SELF-ADVOCACY:  A Cancer Survivor's Handbook            I love lungs

Interactive Tools:

  1. Cancer of the Lung Evaluation and Assessment of Risk (CLEAR)
  2. Check in With Your Lungs Lung Health Checklist (Lung Foundation) (PDF)
  3. Lung Symptoms Assessment Questionnaire (Right Diagnosis)
  4. "What is My Risk For Lung Cancer?" Quiz (Lung Cancer Alliance)
  5. "Your Lung Cancer Risk" Questionnaire (Siteman Cancer Center)
  6. Lung Cancer Risk Assessment (Baylor Health Care System)
  7. Lung Cancer Risk Assessment Tool
  8. Calculate My Lung Cancer Risks (University of Michigan)
  9. "Your Lung Cancer Risk: What Do You Know?" Quiz (Everyday Health)
  10. "Burn Out: A Lung Cancer Challenge" (CancerQuest)
  11. "Know the Flow: Lung Cancer" Quiz (CancerQuest)
  12. Quiz on Lung Cancer (Network Health)
  13. COPD Quiz (National Heart, Lung, and Blood Institute)
  14. My Lung Cancer Care Plan (Free to Breathe)
  15. Treatment Worksheets (American Lung Association)
  16. The Patient Personal Journal
  17. The Caregiver Personal Journal
  18. "Express Your Emotions About Cancer" (Life with Lung Cancer)
  19. Lung Cancer Progress Timeline (American Society of Clinical Oncology's

Multimedia Tutorials and Videos:

  1. "Lung Cancer Resection" Interactive Audio (Patient Education Institute & UNC Health Library)
  2. "Thoracotomy" Interactive Audio (Patient Education Institute & UNC Health Library)
  3. "Women's Lung Health Barometer" (Lung Force)
  4. What is Lung Cancer  (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  5. Lung Cancer Diagnosis (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  6. Lung Cancer Types (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  7. Lung Cancer Staging (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  8. Lung Cancer Treatment (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  9. Lung Cancer Complications (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  10. Lung Cancer Metastasis (Khan Academy & American Association of Colleges of Nursing Collaboration) (YouTube)
  11. Lung Cancer Web-U-Cation (Oncoloink) (Vimeo)

Lung Cancer Screening Tools and Materials:

  1. Lung Cancer CT Screening: Is It Right For Me? (American Lung Association)
  2. Understanding Lung Cancer Risk and Screening (Lung Cancer Alliance)
  3. Lung Cancer Screening Decision Tool (Memorial Sloan Kettering Cancer Center)
  4. Lung Cancer Screening Tool (American Lung Association)
  5. Lung Cancer Screening Quiz (Kennedy Cancer Center)
  6. "Should I be Screened for Lung Cancer" infographic (City of Hope)
  7. Don'
  8. Helping You Decide About Lung Cancer Screening
  10. Lung Cancer Screening: NCCN Guidelines for Patients (National Comprehensive Cancer Network)
  11. Patient Information: Lung Cancer Prevention and Screening, Beyond the Basics (UpToDate)
  12. Lung Cancer Screening Centers in Louisiana (providing by Lung Cancer Alliance)


Family Health History Tools  and Materials:

  1. My Family Health Portrait (Surgeon General)
  2. A Guide to Family Health History Booklet (Genetic Alliance)
  3. A Guide to Genetics and Health  Booklet (Genetic Alliance)
  4. Taking and Recording a Family History (National Genetics and Genomics Education Centre)
  5. Drawing a Family History Worksheet (National Genetics and Genomics Education Centre)
  6. "Your Genetic Health: Patient Information" (National Society of Genetic Counselors)
  7. Know Your Family History (The American Society of Human Genetics & Genetic Alliance)
  9. Making Sense of Your Genes: A Guide to Genetic Counseling (Genetic Alliance)
  10. "Family History: A Window on Your Health" video (GenomeTV, National Human Genome Research Institute)      2015%2010:04:47%20AM

Social Support:

  1. Lung Cancer Support Group (LUNGevity)
  2. Patient Support Group (CancerCare)
  3. Caregiver Support Group (CancerCare)
  4. Lung Cancer Survivors Support Community (Inspire)
  5. Lung Cancer Support Group (DailyStrength)
  7. Lung Connection Community (American Lung Association)
  8. The Cancer Support Community (A Global Network of Education and Hope)
  9. Patients Like Me
  10. Cancer Hope Network
  13. Peer-to-Peer "Phone Buddy Program": 1-800-298-2436 (Lung Cancer Alliance)
  14. Lung Cancer Support Helpline: 1-888-793-9355
  15. Lung Cancer Support Community (Facebook, nonprofit)
  16. White Ribbon Movement - Supporting Lung Cancer Awareness (Facebook)


Financial Assistance: 

  1. A Helping Hand: The Resource Guide for People with Cancer (CancerCare, Financial Ed.)
  2. CancerCare Co-Payment Assistance Foundation (CCAF)
  3. Patient Assistance NOW Oncology or Call 1-800-282-7630
  4. Cancer Financial Assistance Coalition (CFAC)
  5. Patient Advocate Foundation (PAF)
  6. The Co-Pay Relief Program (Patient Advocate Foundation)
  7. Patient Access Network Foundation
  8. (Foundation for Health Coverage Education)
  10. Legal, Case Management and Employment Resources (Lung Cancer Alliance)
  11. Partnership for Prescription Assistance
  12. Sources of Financial Assistance fact sheet (CancerCare)


Other Web Links and Organizations:

  1. Lung Cancer Profile Resources
  2. Lung Cancer Alliance               (You can find our Lung Cancer Study on their website
  3. (You can also find our study on here too)
  4. Lung Cancer Caring Ambassadors Program (CAP) 
  5. Lung Cancer Circle of Hope
  6. LUNGevity Foundation
  7. Lung Cancer Foundation of America
  8. Bonnie J. Addaario Lung Cancer Foundation
  9. LungCan
  11. Life With Lung Cancer
  13. Patient Resource
  15. American Lung Association
  16. American Lung Association's Lung Helpline: 1-800-LUNGUSA(1-800-586-4872)
  17. National Lung Cancer Organizations (Lung Cancer Foundation of America)
  18. Free to Breathe


Smoking Cessation:

  1. The Cost of Smoking Calculator 
  2. Cigarette Calculator: "How Many Cigarettes is That?" (American Cancer Society)
  3. Smoking Risk Calculator
  4. Interactive: Smoking and Tobacco Related Diseases
  5. "What Do You Know About Quitting Smoking?" Quiz (Inspira Health Network)
  6. Non-Smoking Confidence Assessment and Tips (American Heart Association)
  7. "Measure Your Stress" Quiz (
  8. "Lung Cancer in African American Men" Leaflet (Centers for Disease Control and Prevention)
  9. A Quit Smoking Guide for People 50 and Older (National Cancer Institute)
  10. "Clearing the Air: Quit Smoking Today" Booklet (National Cancer Institute)
  11. Guide to Quitting Smoking (American Cancer Society)
  12. Smoking Cessation Educational Kit
  13. Smoking Cessation Quit Kit (Consumer Guide, U.S. Department of Health and Human Services)
  14. Quit Smoking Patient Resources (Division of General Medicine and Clinical Epidemiology)
  15. Why Quit Now? A Resource for Those at High Risk for Lung Cancer (Lung Cancer Alliance)
  18. National Cancer Institute QuitLine: 1-877-44U-QUIT(1-877-448-7848)
  19. Louisiana QuitLine: 1-800-QUIT-NOW(1-800-784-8669)  
  20. QuitSTARTApp (National Cancer Institute) (Free. iOS, Android) 

Contact Us


Diptasri Mandal, PhD:

Principal Investigator

(504) 568-6156      

Angelle Bencaz, MSPH

(504) 568-2216


Jessica Chambliss, MS, CRC:


(504) 568-7027


Toll-Free: 1-888-720-7757       


*Click here if you would like to email us your contact information.



**Or, click here if you would like to complete and submit our Study Participation Form.





Lung Cancer Study Newsletters:                                                                                                                                                                                                                          


Funds to support this project have been obtained from:



The Lung Cancer Study is part of the Genetic Epidemiology of Lung Cancer Consortium (GELCC):


The GELCC is the only familial lung cancer study consortium in the world. 

Hospital Collaborators

Our Study's Local Network of Collaborators:

Related Articles and Publications




"Genetic Epidemiology of Lung Cancer"



What is the Lung Cancer Study?


  • In 1996, the Familial Lung Cancer (lung cancer that recurs in families) Research Study at Louisiana State University Health Sciences Center in New Orleans (LSUHSC-NO) first began to look at the possible genes that affect the potential risks of developing lung cancer in certain families. We have been going non-stop ever since, continuing our search for those genes.

  • The study's primary aim is to find and understand all of the gene(s) that may cause lung cancer.

  • The study will help scientists and the community understand how the gene(s) work with environmental factors (such as smoking and other exposures) in causing lung cancer.



What information does the Lung Cancer Study collect from participating individuals?


  • We collect demographic, medical, and smoking history information by mail and/or phone. This information may provide insights on the many possible exposures that may be linked to lung cancer.
  • You may be interviewed by one of our study's trained investigators on your family history of lung cancer and other cancers.

  • In some cases, a one-time only blood sample and/or saliva sample will be collected at your convenience with the kits we provide.

  • If diagnosed with lung cancer, pathology reports and/or tissue samples will also be collected upon authorization of the patient or next-of-kin.

  • Participation is voluntary and you may withdraw from the study at any time. 



Is the information collected for this study protected?


  • Yes, we are fully compliant with HIPAA (Health Insurance Portability & Accountability Act). 
  • We have received approval from the  LSUHSC-NO IRB (Institutional Review Board).
  • All of the information is collected, coded, and stored in a confidential manner and used only for the purposes of this study. 

  • All biological samples (blood and/or saliva) that you provide is de-identified and labeled with a unique identification number so that your information remains anonymous and you will not be identified in any way.
  • No identifiable information is shared with anyone outside this study.
  • To further protect your privacy, we have obtained a Certificate of Confidentiality provided by the National Institutes of Health (NIH). This helps us protect your privacy by allowing us to refuse to release your information to anyone outside of this research study, even by a court order.

  • Everything you provide will remain strictly confidential and protected. Your privacy is important to us.


Who can participate in this study?


  • Anyone diagnosed with lung cancer or anyone who has a family member that has been diagnosed with lung cancer is encouraged to CONTACT US
  • You can participate no matter where you live. 

  • Participants do not need to come to LSU Health Sciences Center for enrollment. 
  • All information can be provided remotely, all-expenses-paid.
  • Family members may have the opportunity to participate.

  • Current or former smokers that are 60 years of age or older who are not diagnosed with lung cancer and do not have a family history of lung cancer can participate as a "control" (a control is someone with no personal or family history of lung cancer that serves as a comparison). 

  • Please click here on the "STUDY PARTICIPATION FORM" link if you would like to be a participant in the study and one of our research investigators will be in touch with you soon after we receive your submission.
  • You can always call us toll-free at 1-888-720-7757 for more information about the study and to see if you qualify.  



Is there any cost to participate?


  • No, there are no costs to participate in the study. 

  • All study-related materials and kits will be provided to you, free of charge.

  • We also include pre-paid mailers to return any consent forms, questionnaires, and samples (blood and/or saliva).



Why should people participate?


  • Lung cancer is the second most common form of cancer diagnosed among both men and women. 
  • Lung cancer is also the leading cause of cancer deaths in the United States.
  • Some people may carry a gene(s) that increases their risk of developing lung cancer when exposed to certain environmental agents.

  • Identifying lung cancer susceptibility gene(s) in individuals and/or families can play a major role in preventing the disease before it occurs.
  • The study investigators are identifying and learning about people susceptible to lung cancer in order to find information that can lead to better treatment options and diagnostic tools in the future.

  • The Lung Cancer Study also encourages participants to gain further knowledge of their family's health history. Collecting your family history can be an important tool used in assessing your risks for certain inherited diseases.
  • Participation of more families and individuals across the United States will give us better opportunities of finding the familial lung cancer gene(s).



How will participating help in the fight against lung cancer?


  • Participants may not benefit directly from this study, but they will help us understand more about the genetic causes of lung cancer.
  • Having a better understanding of the causation of lung cancer will eventually lead to more effective patient-driven treatment methods. 

  • Participation may result in a future benefit to the patient or to other relatives in finding the gene(s) that increase the risk for lung cancer in some families.
  • Individuals taking part in this study today will help future generations to come.

  • In the long run, participation may contribute to the development of better lung cancer diagnoses, individualized treatments, and personalized preventions.
  • Please know that by participating you will have helped researchers and medical professionals understand more about lung cancer.