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Diptasri Mandal, PhD:

Principal Investigator

(504) 568-6156      

Angelle Bencaz, MSPH:

(504) 568-2216


Jessica Chambliss, MS, CRC:


(504) 568-7027

Toll-Free: 1-888-720-7757       



*Click here if you would like to email us your contact information.



**Or, click here if you would like to complete and submit our "Study Participation Form".









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Funds to support this project have been obtained from:







The Lung Cancer Study is part of the Genetic Epidemiology of Lung Cancer Consortium (GELCC)


The GELCC is the only familial lung cancer study consortium in the world. 


webpage study title


"Genetic Epidemiology of Lung Cancer"


What is the Lung Cancer Study?

  • In 1996, the Familial Lung Cancer (lung cancer that recurs in families) Research Study at Louisiana State University Health Sciences Center in New Orleans (LSUHSC-NO) first began to look at the possible genes that affect the potential risks of developing lung cancer in certain families. In 1999, the Genetic Epidemiology of Lung Cancer Consortium (GELCC) was formally established. We have been going non-stop ever since, continuing our search to identify and understand the genes that increase the risk of developing lung cancer.

  • The study's primary aim is to find and understand all of the gene(s) that cause lung cancer, which may lead to better personalized treatments, and preventative strategies. That is why this study is important because very little is known about the causations of lung cancer, and thus, why participation is so important. Identification of gene mutations through your participation helps to increase targeted treatment options in those diagnosed with lung cancer.

  • The study will help scientists and the community understand how the gene(s) work with environmental factors (such as smoking and other exposures) in causing lung cancer.

  • This is a long-term study funded by the National Institutes of Health (NIH).


What information does the Lung Cancer Study collect from participating individuals?

  • We collect demographic, medical, and smoking history information by mail and/or phone. This information may provide insights on the many possible exposures that may be linked to lung cancer.

  • You may be interviewed by one of our study's trained investigators on your family history of lung cancer and other cancers.

  • A one-time only blood sample and/or saliva sample will be collected at your convenience with the kits we provide at no cost to you.

  • In some cases, pathology reports and/or tissue samples from individuals who have been diagnosed with lung cancer will be collected upon authorization of the patient or next-of-kin.

  • Participation is voluntary and you may withdraw from the study at any time. 


Is the information collected for this study protected?

  • Yes, we are fully compliant with HIPAA (Health Insurance Portability & Accountability Act) and we have received approval from the LSUHSC-NO  IRB (Institutional Review Board).

  • All of the information is collected, coded, and stored in a confidential manner and used only for the purposes of this study. 

  • All biological samples (blood and/or saliva) that you provide is de-identified and labeled with a unique identification number so that your information remains anonymous. You will not be identified in any way.

  • No identifiable information is shared with anyone outside this study. Everything you provide will remain strictly confidential and protected. 
  • To further protect your privacy, we have obtained a Certificate of Confidentiality from the National Institutes of Health (NIH). This helps us protect your privacy by allowing us to refuse to release your information to anyone outside of this research study, even by a court order.

  • Results may be published in a scientific journal, but your identity will not be released.

  • Your privacy is important to us.


Who can participate in this study?

  • Anyone diagnosed with lung cancer or anyone who has a family member that has been diagnosed with lung cancer is encouraged to CONTACT US

  • You can participate no matter where you live. 

  • Participants do not need to come to LSU Health Sciences Center for enrollment and participation. 

  • All information can be provided remotely, all-expenses-paid.
  • Family members may have the opportunity to participate.

  • Please click here on the "STUDY PARTICIPATION FORM" link if you would like to be a participant in the study and one of our research investigators will be in touch with you soon after we receive your submission.

  • You can always call us toll-free at 1-888-720-7757 for more information about the study and to see if you qualify.  

  • Current or former smokers that are 60 years of age or older who are not diagnosed with lung cancer and do not have a family history of lung cancer can participate as a "control" (a "control" is someone with no personal or family history of lung cancer that serves as a "comparison" to those who have or had have lung cancer).  If you would like to participate as a control, please CONTACT US.


Can you participate without a family history of lung cancer?

  • Yes. Individuals who are 45 years of age or younger diagnosed with lung cancer, regardless of their family history (i.e., having one or more relatives with a history of lung cancer), has an opportunity to participate in this study.

  • By participating, you may be helping to explore and possibly find any de nova mutations, or an alteration in a gene that occurs for the first time in a family, which may be important in early onset lung cancer cases.

  • We encourage anyone who has been diagnosed with lung cancer to  CONTACT US.


Is there any cost to participate?

  • No, there are no costs to participate in the study. 

  • All study-related materials and kits will be provided to you, free of charge.

  • We also include pre-paid mailers to return any consent forms, questionnaires, and samples (blood and/or saliva).


Why should people participate?

  • Lung cancer is the second most common form of cancer diagnosed among both men and women across all demographics in the United States and the most common form of cancer in men worldwide. 

  • Lung cancer is also the leading cause of cancer deaths in the United States (and the number one leading cause of cancer related deaths in women in the United States).

  • Some people may carry a gene(s) that increases their risk of developing lung cancer when exposed to certain environmental agents.

  • The study investigators are identifying and learning about people susceptible to lung cancer in order to find information that can lead to better treatment options and diagnostic tools in the future.

  • Identifying lung cancer susceptibility gene(s) in individuals and/or families can also play a major role in preventing the disease before it occurs.

  • The Lung Cancer Study also encourages participants to gain further knowledge of their family's health history. Collecting your family history can be an important tool used in assessing your risks for certain inherited diseases.
  • Participation of more families and individuals across the United States will give us better opportunities and successes of finding the familial lung cancer genes. So, through your enrollment in this study, you are helping to defeat lung cancer by helping us understand the disease better.

  • Very little is known about lung cancer, and that is why this study is so important which is dependent on participants who have been diagnosed with lung cancer.


How will participating help in the fight against lung cancer?

  • Participants may not benefit directly from this study, but they will help us understand more about the genetic causes of lung cancer.

  • Having a better understanding of the causation of lung cancer will eventually lead to more effective patient-driven treatment methods. 

  • Participation may result in a future benefit to the patient or to other relatives in finding the gene(s) that increase the risk for lung cancer in some families.

  • Individuals taking part in this study today will help future generations to come.

  • In the long run, participation may contribute to the development of better lung cancer diagnoses, individualized treatments, and personalized preventions.

  • Please know that by participating you will have helped researchers and medical professionals understand more about lung cancer.